leprosy

The Long Struggle Against the Stigma Surrounding Hansen’s Disease

At the age of 80, Yohei Sasakawa continues to travel around the world to promote solutions for some of the challenges facing humanity, such as Hansen's Disease or leprosy, wars and disabilities, factors of stigma and exclusion.

Early Detection is the Solution for Hansen’s Disease

On Jun. 27, Faustino Pinto was in Geneva, Switzerland, where he spoke to people at the United Nations about the fight against Hansen's Disease and the stigma surrounding it, at a meeting during the 41st session of the Human Rights Council.

Prejudice and Discrimination, the Uncured Ills of Leprosy

“The ambulance team refused to take my sick friend to the hospital because he had had Hanseniasis years before," said Yohei Sasakawa, president of the Nippon Foundation, at one of the meetings held during his Jul. 1-10 visit to Brazil.

A Lifelong Battle Against the “Disease of Silence”

Yohei Sasakawa has dedicated half of his 80 years of life to combating the "disease of silence" and is still fighting the battle, as president of the Nippon Foundation and World Health Organisation (WHO) goodwill ambassador for elimination of leprosy, formally known as Hansen's Disease.

Japan Boosts Complex Fight to Eliminate Leprosy in Brazil

When cases of Hansen's disease, better known as leprosy, increase in Brazil, it is not due to a lack of medical assistance but to the growing efficacy of the health system in detecting infections, contrary to the situation in other countries.

Q&A: 607 Island Atolls Means it’s Hard to Distribute Leprosy Healthcare to All Micronesians

During his 22-year career in the health sector, Marcus Samo has seen the Federated States of Micronesia (FSM) suffer from an increased burden of disease while at the same time the resources to address them have either remained the same or decreased.

Missing Data & Inefficient Drug Distribution Tops List of Micronesia’s Leprosy Challenges

It’s a good day for Dexter, a 25-year-old fisherman from Pohnpei in the Federated States of Micronesia. He’s just been told that he is cured of leprosy.

As Marshall Islands Integrates Healthcare Services, Experts Offer a Word of Caution

In Jack Niedenthal’s office in Majuro, there is an ominous reminder of the dark history of the Marshall Islands—once the site for dozens of nuclear tests conducted by the United States between 1946 and 1962. But it also provides a strong message about the future of island nation.

Greater Skills Equals Greater Ability to Combat Leprosy

It’s a Friday morning and Dr. Ken Jetton, the only doctor who treats leprosy in Majuro, the capital of the Marshall Islands, is seeing a patient recently cured of the disease.

Increasing Leprosy Cases in Micronesia Points to Better Detection and Awareness

Elizabeth Keller is one of the most senior health officials in the Federated States of Micronesia (FSM). She is the current acting chief of Public Health and also the head of the leprosy programme in the island nation’s capital of Pohnpei.

Financial Hurdles to Eliminating Leprosy in Micronesia

Mayleen Ekiek has been working with the Department of Health in the Federated States of Micronesia (FSM) for 12 years now. She is the head of the National Leprosy Programme in the Pacific island nation, which still remains one of three, along with the Marshall Islands and Kiribati, that is yet to eliminate leprosy.

“Don’t Tell My Husband I Have Leprosy”: Social Stigma Silences Marshall Islands’ Women

Meretha Pierson has been a nurse for the past seven years, working in the government-run leprosy clinic in Majuro, the capital of the Marshall Islands. Her patients come in all ages, from different economic backgrounds and different professions. But, aside from their diagnosis, they all have something else in common: everyone wants to keep their illness a secret.

Q&A: Why Treating Leprosy as a Special Disease Violates the Rights of the Person Affected by It

His multiple awards and degrees aside, Dr. Arturo Cunanan is known as a people’s doctor; one who has profound belief in the human rights of every person affected by Hansen’s disease, commonly known as leprosy.

VIDEO: “People Affected by Leprosy Suffer Severe Discrimination”

“More than 50 countries in the world have discriminatory laws against people affected by Hansen's disease. There is also a lot of discrimination in the public administration…and in society," Alice Cruz, U.N. Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, said in this interview with IPS (in Spanish, with English subtitles).

People Affected by Leprosy in Latin America Unite for Their Rights and Their Voice

With the decision to found a regional coalition to promote rights and greater participation in national and international forums and decisions, the First Latin American and Caribbean Assembly of Organisations of People Affected by Hansen's disease, popularly known - and stigmatised - as leprosy, came to an end.

In Latin America, the Term Leprosy Still Carries a Burden from Biblical Times

Known scientifically as Hansen's disease, leprosy carries a symbolic burden from the past that people affected by the disease and experts from around Latin America are fighting, including the terminology used.

People Affected by Leprosy Still Face Stigma in Latin America

The First Latin American and Caribbean Meeting of Organisations of People Affected by Hansen's Disease, more widely known as leprosy, seeks to exorcise stigma and discrimination. The meeting has brought together around a hundred activists in Brazil.

A Disease as Old as Time – Eliminated but Not Eradicated

As the Executive Director of Sasakawa Memorial Health Foundation (SMHF), Takahiro Nanri has been working on the issue of leprosy since 2014. Over the past few years, he has traveled across the world visiting the large number of leprosy projects that SMHF has been supporting and meeting dozens of organisations led by leprosy-affected people.

Q&A: Important to Treat Anyone Suffering from Leprosy as an Equal Individual

Discrimination against women who are affected by leprosy or Hansen's Disease is a harsh reality, says Alice Cruz is the United Nations Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members.

New Regional Secretariat to Advance Leprosy Advocacy in Asia

Organisations of people affected by leprosy in Asia have agreed to form a regional-level secretariat to support national advocacies and represent their collective agenda at a world conference to be held later this year.

Q&A: Leprosy-affected People Live Not at the Bottom, but Outside the Social Pyramid

Takahiro Nanri is the Executive Director of Sasakawa Memorial Health Foundation which has been supporting the global fight against leprosy for almost five decades. Since 2014, Nanri has been leading the foundation’s leprosy projects across the world and has deep insights into the challenges faced by the people affected by leprosy as well as the organisations that work with them.

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