As the Executive Director of Sasakawa Memorial Health Foundation (SMHF), Takahiro Nanri has been working on the issue of leprosy since 2014. Over the past few years, he has traveled across the world visiting the large number of leprosy projects that SMHF has been supporting and meeting dozens of organisations led by leprosy-affected people.
Discrimination against women who are affected by leprosy or Hansen's Disease is a harsh reality, says Alice Cruz is the United Nations Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members.
Organisations of people affected by leprosy in Asia have agreed to form a regional-level secretariat to support national advocacies and represent their collective agenda at a world conference to be held later this year.
Takahiro Nanri is the Executive Director of Sasakawa Memorial Health Foundation which has been supporting the global fight against leprosy for almost five decades. Since 2014, Nanri has been leading the foundation’s leprosy projects across the world and has deep insights into the challenges faced by the people affected by leprosy as well as the organisations that work with them.
The tragic tale of Thobias Alexander Manas’s personal experience with leprosy is all too typical.
Kurarenga Kaitire lives in Kiribati—one of the world’s most climate-vulnerable nations. Already vulnerable to nature, the 29-year-old mother of five has faced a series of vulnerabilities over the past decade, including facing social stigma and domestic abuse.
When Ariel Lazarte from Quezon City, Philippines, was first diagnosed with leprosy in 2014, his life seemed as if it were falling apart. But now more than four years later Lazarte’s life is a huge contrast from the poverty and isolation he experienced as a person affected by leprosy.
Dr. Maria Francia Laxamana is the Assistant Secretary in the Philippines ministry of health. With nearly two decades of work both as a senior government official and also as an expert in several non-government organisations, Laxamana has deep insight into the issue of leprosy in this Southeast Asian nation and the challenges faced by those who are affected by the disease.
Dr Maria Francia Laxamana, assistant secretary of health in the Department of Health, Philippines outlines her recommendations for a leprosy country by 2020.
Strengthening the participation of persons affected by leprosy, or SPP, has proven to be an effective strategy in reaching out to often isolated sufferers in local communities throughout Asia. A significant challenge to civil society organisations, however, is finding enough management talent to maintain and expand the programmes.
Jennifer Quimno could put anyone at ease. So when she travels across the Philippines as part of peer to peer programme that helps identify new leprosy cases, people generally allow her to examine them.
Growing up in Kathmandu, Nepal, Amar Bahadur Timalsina wasn’t allowed to attend school as a young boy because he was affected by leprosy. But decades later, after treatment and being able to re-integrate into his community, the boy who was once denied an education is now inspiringly the principal of a school of 400 students.
The stubborn challenge of diagnosis and treatment of leprosy among difficult to reach populations in the Philippines should soon become easier with the rollout of a mobile app connecting field health workers with physicians and clinics.
In the first six months of this year, the southern African nation of Mozambique has already registered 300 more cases of leprosy, some 951 cases, than it registered for the whole of 2017.
It takes Faurito António, 42, from Lalaua district, Nampula Province, two hours to reach his nearest health centre in order to receive the drugs necessary for his treatment of leprosy. António, whose foot has become affected by the muscle weakness that occurs when leprosy goes untreated, says this long walk while ill is the reason why many don’t continue treatment - which can take between six to 12 months.