Disaster Risk Management Project (DRM). An elderly person with a disability goes down the stairs of the Cyclone shelter in Mohanagar, Sitakunda, Bangladesh. Credit: Brice Blondel/Handicap International

By Lucy Westcott
UNITED NATIONS, Aug 20 2013 (IPS)

Upon first glance, the emergency checklist distributed in Haiti after the 2010 earthquake looks like any other. Organised into key categories like water, sanitation and hygiene, and psychosocial support, the information is typical of the kind circulated for emergency response.

But after a closer read, with recommendations for latrines to be built with a 90cm diameter so a wheelchair can turn around, and 80-cm-wide doors for wheelchair or crutch-users to pass through comfortably, it is clear that the checklist, distributed by Handicap International, was intended for persons with disabilities living in the disaster-ravaged country.“When we don’t include people with disabilities, that’s when the most deaths and casualties happen.” -- Fred Doulton of UN Enable

Natural disasters are common in many developing countries across the globe, and organisations like Handicap International are helping communities plan better for their disabled populations. There are between 2.9 and 4.2 million persons with disabilities among the world’s 42 million forcibly displaced population, according to data from the United Nations Refugee Agency (UNHCR).

For many people living with disabilities in developing countries, social stigma and cultural barriers prevent community cohesion, which is essential for emergency planning and preparedness, Annie Lafrenière, social inclusion and technical adviser at Handicap International, told IPS.

“People won’t speak about social barriers… they’ll talk about ramps [instead],” Lafrenière said. “[People with disabilities] are not considered the same as everyone else.”

Developing countries are vulnerable and at a higher risk of disasters because they are less prepared and equipped to deal with them, and not necessarily because they are more exposed to hazards, Lafrenière says. Persons with disabilities are often invisible to relief activities and unable to reach food or water checkpoints due to destroyed roads or non-accessible transportation.

“Meeting basic needs… remains a priority and often a challenge for communities affected by disasters, whether they are persons with or without disabilities,” Lafrenière says. “What our experiences have shown us… is that the presence of disability amplifies the impact of the disaster on a person’s life… and reduce[s] the range of strategies to cope with them.”

Inclusive planning is one improvement that can be made by communities in developing countries, and one that Handicap International stresses. It’s vital that disabled people are part of planning meetings and committees, as they help to spread awareness while offering their expertise.

“When we don’t include people with disabilities, that’s when the most deaths and casualties happen,” Fred Doulton, social affairs officer at UN Enable, which focuses on the rights of disabled people and is part of the United Nations Economic and Social Council (ECOSOC), told IPS. “By asking [people with disabilities] directly about what they think, you get to the core issues.”

The United Nations Office for Disaster Risk Reduction (UNISDR) recently released a survey asking persons with disabilities around the world about their experience living with and preparing for disasters.

In the Indonesian province of East Nusa Tenggara (NTT province), Handicap International is working with schools and children with disabilities and their families to improve awareness and response to disasters. The region is prone to flooding, landslides and whirlwinds; in 2012 there were 258 whirlwinds, 28 times the number recorded in 2002, according to Indonesia’s National Disaster Mitigation Agency (BNPB).

“We are implementing activities within the community to increase resilience to natural disasters, but we are also implementing activities within schools to be sure that children with disabilities will be taken into consideration,” Catherine Gillet, programme director for Handicap International in Indonesia/Timor-Leste, told IPS from the ground.

The NTT province consists of rural communities living in hilly areas and on dry and rocky land. The terrain can be treacherous, with communities staying either in valleys near the rivers, where there is a high risk of floods during the rainy season, or on the slopes of hills near areas suitable for crop cultivation, but where landslides pose a huge risk.

The children, mainly in grades three to five, raise awareness among their peers about disaster risk and are involved in risk assessment and identification. Disabled and non-disabled schoolchildren also demonstrate good practices for evacuation in disasters and work together in mock drills.

“For children with disabilities [the main challenge] is the problem of access, the problem of moving around,” Mathieu Dewerse, regional operational coordinator for Handicap International in Indonesia/Timor-Leste, told IPS.

“This is compounded in the case of disasters. If we think about a landslide, the road may be cut, there could be rocks on the road. If this is a child that uses crutches, it’s very hard to move around,” Dewerse says.

During past disasters, children with mobility disabilities have been supported by tricycles or motorbikes, Dewerse says.

For children with sensory impairments in the region, access to information is one of the main concerns. Communities have set up flag systems to compensate for the sound of an evacuation signal, which can’t be heard by children with hearing impairments, and have recruited friends and family to make sure they get away safely.

“Take the example of a child who doesn’t see. It’s a very big problem, especially if they have to evacuate quickly,” Dewerse says.

The provision of more mobility devices adapted to the needs of children with disabilities is an important step in helping communities the next time there is a flood or landslide, Dewerse says.

In the neighbouring Philippines, Handicap International replaced the cumbersome wheelchair of Joshua Degas, a 10-year-old boy with cerebral palsy, after Tropical Storm Washi in 2011, with one his own size, improving his future mobility in the face of potential disasters.

(See Part One and Part Two)

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By Lucy Westcott
NEW YORK, Aug 14 2013 (IPS)

Like many people living in the path of Hurricane Sandy last fall, Lauren Scrivo needed more battery power. Despite a call offering help from the mayor of Fairfield, New Jersey, where Scrivo lives with her family, her concerns went far beyond extra water bottles and flashlights.

An emergency shelter at Seward Park High School in Lower Manhattan during Hurricane Sandy that disabled people had a hard time accessing. Credit: Center for Independence of the Disabled, New York (CIDNY)

Scrivo, a communications specialist at the Kessler Foundation, has a form of muscular dystrophy and uses a ventilator and power wheelchair. When the electricity went down during the storm, she only had battery power to fuel the machine; leaving the generator running outside was too risky.

“When we lost power it was a little scary, we didn’t know how long it would be for. I couldn’t leave the generator running at night because people were stealing them, so [I] had to use battery power,” Scrivo told IPS.

The gas shortage also presented an enormous danger for Scrivo as her generator began to run low on fuel.

“You can’t just go out and stand in the gas line,” she said. “If we couldn’t fuel our generator, we wouldn’t have been able to recharge my [ventilator] batteries or use my other necessary medical equipment.”

Now Scrivo, along with the global disabled community, will have the opportunity to voice her concerns after the United Nations Office for Disaster Risk Reduction (UNISDR) launched a survey asking people with disabilities about their experience living with and preparing for disasters.

The survey, believed to be the first time global data on emergency planning and disabilities is being collected, asks participants what kind of emergency, from landslides to insect infestations, their communities are vulnerable to, and whether they have been involved in municipal emergency management planning.

“We know from a number of major disasters that disabled people are overlooked… twice as many [disabled] people died in the Fukushima disaster [than non-disabled people],” Denis McClean, spokesperson for UNISDR, told IPS from Geneva.

Roughly 10 percent of the world’s population is living with a disability, according to data from UN Enable, the United Nations body that focuses on disability issues.

“It’s quite clear that we need to pay more attention and talk to disabled people,” McClean said, adding that disabled people are at a particular disadvantage when it comes to early response in emergencies.

New York City’s disabled population, which numbers over 800,000 according to data from the Center for Independence of the Disabled, New York (CIDNY), recently had to deal with devastation from Sandy.

During the storm, there were 118,000 disabled people in the Zone 1 evacuation area alone, according to CIDNY.

Milagros Franco, a disaster case manager for Sandy survivors at the Brooklyn Centre for Independence of the Disabled (BCID), believes that disaster planning and response for disabled people in New York City is inadequate.

“I was kind of snobbish… I got some food beforehand, I had two flashlights. I live in Manhattan, so I didn’t expect the lights to go out,” Franco, who has cerebral palsy and uses a power wheelchair, told IPS.

The day before Sandy made landfall in New York, Franco’s superintendent told her the building’s elevator would be shut down as the lobby of her East 21st Street building is prone to flooding. Although she lives on the second floor, “When you’re in a wheelchair, that’s pretty far,” Franco says.

Franco was stuck in her building for three days, but did have a friend with her who ventured to 34th Street for food and phone recharging. In lieu of the buzzer system, which was a victim of the power outage, Franco lowered her keys, tied to a piece of rope, out her window to let her friend inside.

But some people aren’t so lucky to have a support system, said Margi Trapani, communications and education director at CIDNY. Enlisting the support of family and friends is one of the main ways the City of New York tells disabled people to prepare for disasters, along with preparing a “go bag” of emergency supplies and knowing how and when to evacuate.

Trapani’s organisation, alongside BCID and two individual plaintiffs, filed a lawsuit against Mayor Michael Bloomberg and the City of New York in 2011 after perceiving a lack of help from the city for people with disabilities during disasters in the decade following the Sep. 11, 2001 attacks. The case was heard in March, with the judge’s ruling expected at the end of the summer.

“During 9/11, people with disabilities had been left off the map,” Trapani told IPS. “There were a lot of respiratory problems and mental health issues [after], tonnes of issues no one was prepared to deal with.”

Hurricane Sandy revealed the inadequacy of emergency shelters for the city’s disabled population. Issues with the shelters include non-accessible and stairs-only entrances, lack of accessible bathrooms and cots, and staff who are underprepared to respond to disabled people, Trapani says.

More inclusion of disabled community in the emergency management planning process is a step the city can take to improve its response, Trapani says.

“Our community can help in these situations… we’re experts in figuring out how to deal with problems,” she says.

When a disaster strikes at short notice, there is sometimes a limit to how ready people can be.

“No matter how prepared you think you are, you’re never prepared until after the fact,” Franco said, adding that at least now she has a hand-crank radio.

(See Part Two and Part Three of the series)

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